Release of the biological material and data from the Estonian Genome Center, University of Tartu (EGCUT)
Release of the biological material and data
The anonymous data of the gene donors are available for research projects.
The data release is conducted in accordance with the regulations of the Human Genes Research Act.
The Estonian Genome Center, University of Tartu releases:
- State of the health data; lifestyle, demographic, and genetic data
- Biological materials: DNA, WBC, plasma
An application has to be submitted to the Estonian Genome Center, University of Tartu
(Application form for data release ) in order to request a release of the biological materials and data of the gene donors for research.
Before an application can be accepted for review, the research project has to obtain an approval from the Ethics Review Committee on Human Research of the University of Tartu.
To obtain an approval for the project application (completed application form with the permission from the Ethics Committee) from the EGCUT, the director of the EGCUT submits the application for evaluation to the scientific committee.
If the application is approved, the EGCUT will sign a contract with the applicant.
The applicant will reimburse the costs of material release, regardless of whether the data are issued for scientific or commercial purposes.
During the transfer of the health data and/or biological material, a data release form will be signed.
The applicant will be asked to submit the results of the research project that were obtained using the data of the gene donors, to the EGCUT by the time specified in the contract. These results will complement the EGCUT database.